ISD I – Ethics/Humanities/Health Law

Session 2

Paper Topics

 

As part of the E/H/HL requirements for the ISD I course, students are required to write a 4-5 page essay (8-10 page essay, if not also doing the journal assignment).  This essay should be submitted to Andrew Latus by Monday, June 9th.  Some possible topics are below.

 

1. The following case raises a number of difficult questions regarding the idea of informed consent (and, in particular, about decisions to refuse treatment).  Write an essay which explores the ways in which this situation is problematic both ethically and legally.  What should be done in such a case?

 

Tom is an 80 year-old man with diabetes, renal insufficiency, hypertension, coronary artery disease and severe peripheral vascular disease.

 

Two years ago, Tom had a left above the knee amputation.  For the last three months, Tom has had an infection in the right lower extremity.  Two weeks ago, he was admitted to hospital concerning this infection.  At this time, a right below the knee amputation was recommended to him (since other treatment options had failed).  Tom refused, saying that he had already lost a leg and saw no reason to live without any legs.   Tom was discharged with a prescription for oral antibiotics although he was advised that this was not the optimal treatment.

 

Today, he was admitted to the hospital with a right lower extremity infection and sepsis.  He was extremely confused and unable to communicate clearly.  The orthopaedic surgeon brought in to consult on his case recommended that a right below the knee amputation be carried out.  When his prior refusal of this procedure was brought up, the physician who discharged Tom the last time was consulted.  He indicated that their conversation prior to discharge had concerned what the optimal way of treating the infection was, not the choice between amputation and death.   The consulting surgeon is now of the opinion that Tom faces a real risk of dying if the amputation is not performed soon.  Tom has no living relatives, nor a designated substitute decision maker, nor has he prepared an Advance Health Directive.

 

Note:  A similar, although not identical, case is discussed in the article “Achieving Informed Consent When Patients Appear to Lack Capacity & Surrogates,” by Neil S. Wenger et al in Clinical Orthopaedics and Related Research 378 (2000): 78-82.  This journal is available in the library.

 

2. Although the idea of informed consent has come to be thought of as one of the cornerstones of medical ethics, there are those who think that the goal of acquiring informed consent from patients is a futile one.  Discuss this claim.  Should informed consent have the status it does within medical ethics? 

 

Note:  For discussions of this issue, see “Informed (But Uneducated) Consent” by F.J. Ingelfinger, New England Journal of Medicine 287 (1972): 465-466 and “Abandoning Informed Consent: An Idea Whose Time Has Not Yet Come”  by B.C. White and J. Zimbelman, Journal of Medicine and Philosophy 23 (1998):477-99.

 

3. Discuss, from an ethical point of view, what was done in the following case.  Could there be circumstances under which a kidney donation without consent is ethically acceptable?  Is this such a case?  Defend your answer.

 

Doctors take kidney from patient incapable of giving consent

Ganapati Mudur , New Delhi

British Medical Journal 318 (1999): 753

Doctors in the southern Indian city of Bangalore last week removed a kidney from a 36 year old deaf and mute man and transplanted it into his brother who had end stage kidney failure. The operation followed a six week debate on the ethics of taking an organ from a donor unable to communicate or give consent for the operation.

 

Nephrologists said that a transplant was the only option for the 40 year old patient in whom kidney failure of unknown cause was diagnosed in January this year. The patient could not afford long term dialysis, and a search for a donor showed that his brother, who was born deaf and mute, had the same blood group and an ideal antigen match.

The family was poor, and the deaf and mute brother had never received specialised education and was thus incapable of communication. "There was no way we could make him comprehend what he was being asked for," said Dr Ajit Huilgol, transplantation surgeon at the Karnataka Nephrology and Transplantation Institute in Bangalore.

The institute's doctors sought opinions from medical and legal experts in India. Some cautioned that the case had the potential to set a dangerous precedent for the use of non-consenting relatives for organ transplants.

The Indian parliament outlawed five years ago the removal of organs from unrelated donors in exchange for payment, but the law allows organ donations by related individuals with their informed consent.

On the advice of medicolegal experts, the doctors spent several weeks evaluating the relationship between the brothers. "We convinced ourselves that genuine affection exists between them," said Dr Shankaran Sundar, a nephrologist at the institute.

The family's absolute financial dependence on the patient was also a factor.

4. What ‘message’ does this cartoon carry?  It is from a postcard (c. 2000) advertising the Drugs and Therapeutics Bulletin.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

You may also write on a topic of your own choosing.  Please see either John Crellin or Andrew Latus to discuss a topic.